Rarelink.eu
www.rarelink.eu (no/se/dk/fi)is a link collection for rare diseases.
This site is a useful source for highly qualified information aimed at both patients and experts.
Get in touch
Via www.rarelink.eu (no/se/dk/fi/org) it is possible to establish contact between patients/next of kin with rare diseases in Norway, Sweden, Finland and/or Denmark.
This contact may either be initiated through the patient organizations within the respective countries, or through the Danish contact system. The latter aims at establishing contact between persons with rare diagnoses, who are not supported by a patient organization in Denmark, Norway and Sweden. This contact system is administered from Denmark, and it is subject to Danish law. In Finland there is a simmilar system, for the finnish people.
To find out which contact options that exist regarding the various diagnoses, please go to the alphabetical list above.
